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Alopecia Totalis

alopecia universalisQ:

I am a 26-year-old woman.Not too long ago, I felt as if I owned the world. Then I got alopecia totalis, and now I’d rather hide, so I understand what it feels like to be a freak. But, remember, we have nothing to be ashamed about. This condition is more widespread than we think and people are more understanding than we give them credit for. People like us can live normal, happy lives, although maybe we may stand out in a crowd. Since I acquired alopecia totalis, lots of my people have told me they know someone with my disease. There are more people than we know who have alopecia totalis, like NBA player Charlie Villanueva. Although we don’t look exactly like other people, if we learn to overcome our own self-doubts we can be phenomenally successful people.

I’m a female. And it is my deepest desire to show the world, and especially other women suffering form alopecia totalis, that I can live with self-respect and high self-regard. I want to make it one of my goals to inspire young girls with alopecia totalis and help them to achieve their dreams.

I’m still in my twenties and I know I haven’t experienced the more serious consequences of alopecia totalis. I’m determined to maintain a positive outlook and I believe I will even later on in life. There’s a lot more to a human being than their hair style. In fact, maybe having alopecia totalis will help us focus more on our character and integrity than superficial appearances.  If I had the choice of being bald and fit, or with a full head of hair and obese, I choose the former. I want to be a good steward of my physical body.

I love all of you. There is more to you than being bald. Much more. Don’t allow yourselves to feel like you’re so different from the world. Let me remind you that your closest buddies and those in your family who really love you, they see you for your true self. You don’t have to resort to wearing a wig or some other disguise to be accepted.

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What a wonderful attitude!  Alopecia Universalis (AU) treatment can be complex and sometimes not even possible. If you visited one of our California Hair Restoration Offices and met some of my patients, you’d be dumbfounded by how crippled and saddened they feel at the loss of their hair.

A message I always give to my patients is that it is beneficial to look good physically. I say if it’s possible for a person to alter their appearance in a way that’s socially acceptable (e.g., getting a swastika tatoo on one’s face wouldn’t be), then do it. But if it’s not something that can be changed, know that you were made that way for a reason, and our differences are what make us unique and human.

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